The NCCS Online Community is for parents, caregivers & survivors of childhood cancer to connect, share and offer support to one another.

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Profile IconCristina, Rebecca Renneberg and Kim Burns joined NCCS online community
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Forum

This is all so new....

Started by Becky Hughes in Introduce Yourself. Last reply by nccs admin Jun 2. 1 Reply

Well, I found out four days ago that my nine-year-old son has cancer.  He had been having neck pains for almost a year, and we had been told by our pediatrician and orthopedic doctor that it was a…Continue

Tags: new, so, all, is, This

Baby after Bone Marrow Transplant

Started by Janell Strang in Introduce Yourself Mar 17. 0 Replies

I'm searching for another childhood cancer survivor (bone marrow transplant) who has had a baby. I had BMT almost 19 years ago and have a 1 year old son. I am looking to connect with someone who has…Continue

Daughter with Glioblastoma

Started by Pete Zuyus in Brain Tumors/Tumors of the Central Nervous System. Last reply by Vashni Nilon Mar 13. 1 Reply

Hello --  This is Pete Zuyus.  My daughter Scarlett is 4 years old and has just been diagnosed with Giant Cell Glioblastoma Multiform A.  The tumor was located in the back left portion of her brain.…Continue

Tags: Glioblastoma

Acute Lymphoblastic Leukemia and non-Hodgkin Lymphoma survivor

Started by Hillary Husband in Leukemia/Lymphoma. Last reply by Delanna Pappas Mar 3. 1 Reply

Hi, I'm Hillary! I'm a 19 year old chemistry major attending Louisiana College.  I had B-cell acute lymphoblastic leukemia and T-cell non-Hodgkin lymphoma.  If anyone would like to chat, share…Continue

Blog Posts

SUMMER!

Posted by Meg Tapp on May 21, 2014 at 9:03pm 0 Comments

Hello everyone!

Tomorrow is my last day of class before summer starts. At 10:30 am, I'll be free. Well, not totally. I'm going to spend my summer studying for the PCAT (pharmacy college admissions test). But I'll at least get to see a whole lot more of my family, and I'm excited for that.

I've really enjoyed updating this blog, and I hope you've found it useful. I'd like to keep popping back in over the summer. If anyone ever has any questions for me just let me…

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SPAM

Posted by nccs admin on May 5, 2014 at 11:09am 0 Comments

I apologize if anyone has gotten any suspicious or inappropriate messages on their pages. We work hard to make sure no Spammers get through but occasionally they sneak by. There was one today and they have been deleted. If you ever get a message or comment that you do not feel is appropriate please contact us right away and we will look into it.
Thanks

Post-cancer complications

Posted by Rachael Avery on April 25, 2014 at 12:54pm 0 Comments

Hey all,

Today I want to discuss a few complications I had after cancer, and some that still even effect me now, 10 years later.

I had Stage 3 Wilm's Tumor at the age of 7. They removed my right kidney completely because the tumor was the size of a grapefruit.

After surgery and during chemo, I had a few complications with blockages. This happens when scar tissue builds up and causes blockages in your body. I had 3 separate blockages, and this caused me to have high…

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What If

Posted by Meg Tapp on April 15, 2014 at 6:24pm 1 Comment

I don't have any known late-term side effects from my cancer treatments. However, I underwent two and a half years of fairly new, intense chemotherapy. They don't know exactly what the long-term results could be, and that terrifies me. I would never have it any other way, of course - without treatment, I would have died. Still, sometimes I find myself wondering "what if?" I think it's the biggest question on the minds of many cancer survivors, and that's why I'm going to address it…

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