The NCCS Online Community is for parents, caregivers & survivors of childhood cancer to connect, share and offer support to one another.


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Latest Activity

Andrea Rouse posted a status
"I"m so happy to be a part of this community! My son is doing well right now but still has a long way to go with his chemo treatments."
Andrea Rouse is now a member of NCCS online community
Meg Tapp posted a blog post
Apr 15
Rachael Avery posted a blog post
Apr 13
Delanna Pappas posted a blog post
Apr 10
Meg Tapp posted a blog post
Apr 6
Delanna Pappas posted a blog post
Apr 2
Jennifer M Kerr is now a member of NCCS online community
Apr 2
Alicia Lovejoy is now a member of NCCS online community
Mar 28
Delanna Pappas posted a blog post
Mar 23
Meg Tapp posted a blog post
Mar 20
Sheila Harris posted a status
Mar 20
Clive Gomes is now a member of NCCS online community
Mar 20
Janell Strang posted a discussion
Mar 17
Jackson David Allison posted a blog post
Mar 13
Vashni Nilon is now a member of NCCS online community
Mar 13


Baby after Bone Marrow Transplant

Started by Janell Strang in Introduce Yourself Mar 17. 0 Replies

I'm searching for another childhood cancer survivor (bone marrow transplant) who has had a baby. I had BMT almost 19 years ago and have a 1 year old son. I am looking to connect with someone who has…Continue

Daughter with Glioblastoma

Started by Pete Zuyus in Brain Tumors/Tumors of the Central Nervous System. Last reply by Vashni Nilon Mar 13. 1 Reply

Hello --  This is Pete Zuyus.  My daughter Scarlett is 4 years old and has just been diagnosed with Giant Cell Glioblastoma Multiform A.  The tumor was located in the back left portion of her brain.…Continue

Tags: Glioblastoma

Acute Lymphoblastic Leukemia and non-Hodgkin Lymphoma survivor

Started by Hillary Husband in Leukemia/Lymphoma. Last reply by Delanna Pappas Mar 3. 1 Reply

Hi, I'm Hillary! I'm a 19 year old chemistry major attending Louisiana College.  I had B-cell acute lymphoblastic leukemia and T-cell non-Hodgkin lymphoma.  If anyone would like to chat, share…Continue

Hair Loss Restoration Info

Started by Jodi in Leukemia/Lymphoma. Last reply by Maria Tolken Mar 1. 1 Reply

My son had acute myeloid leukemia & a bone marrow transplant when he was 2yrs old.  His hair grew back really thin.  He is 13yrs old & thankfully in remission but is now feeling self…Continue

Blog Posts

What If

Posted by Meg Tapp on April 15, 2014 at 6:24pm 1 Comment

I don't have any known late-term side effects from my cancer treatments. However, I underwent two and a half years of fairly new, intense chemotherapy. They don't know exactly what the long-term results could be, and that terrifies me. I would never have it any other way, of course - without treatment, I would have died. Still, sometimes I find myself wondering "what if?" I think it's the biggest question on the minds of many cancer survivors, and that's why I'm going to address it…


Make a Wish

Posted by Rachael Avery on April 13, 2014 at 10:23pm 0 Comments

Make a Wish was the most amazing experience I could've gone through as a cancer survivor. As most of you know, Make a Wish grants childhood cancer patients one wish (within reason) that they've always wanted to do. 

As an 8 year old, I couldn't decide between getting a pool or going to Disney World. They didn't allow in-ground pools, only out-ground, so I chose to go to Disney World. This is the most common wish and send hundreds of children a year. I had never been and I was beyond…


still in the hospital

Posted by Delanna Pappas on April 10, 2014 at 9:03am 0 Comments

10th day of 14 still at the hospital recovering from septic shock/infection got off the blood pressure meds and one antibiotic. still on cefepime for another 4days and then should be able to go home. Jordie has been so strong through this but is really starting to get home sick can't say I blame her I'm starting to miss home too!!!

Career Aspirations

Posted by Meg Tapp on April 6, 2014 at 6:23pm 0 Comments

Hello everyone. Spring is finally here in the northwoods (despite a six or so inches of snow on Thursday), and I couldn't be more excited. I hope you are all having great weather as well.

I have an organic chemistry exam tomorrow which I should really be studying for (this upcoming week is our last week of classes before finals!) but as I was reviewing my notes for yet another consecutive hour I got to thinking about why I am doing this. Why do I stay up past 1 am every night…


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